

Ask the community...
I'm so sorry you're going through this difficult situation. As someone who recently helped navigate similar challenges with my elderly parents, I wanted to add a few practical suggestions that haven't been mentioned yet: 1) **Document everything now while he can still communicate**: Create a detailed inventory of all accounts, insurance policies, investment accounts, and important contacts (doctors, financial advisors, etc.). Include account numbers, phone numbers, and any special instructions. 2) **Consider a medical alert system**: As his condition progresses, having a way for him to call for help if you're not home becomes crucial. Many have fall detection features too. 3) **Look into your state's SHIP program** (State Health Insurance Assistance Program) - they provide free counseling about Medicare benefits and can help you understand what services might be covered for dementia care. 4) **Banking considerations**: Make sure you have joint access to all accounts, but also consider setting up automatic bill pay for essential services now while he can still approve the setup. The credit card situation is tough, but being an authorized user does help build some credit history. You might also ask your bank about a secured credit card - they're easier to qualify for and can help establish your independent credit. You're being incredibly proactive by planning ahead. Take it one step at a time, and don't hesitate to lean on the support resources others have mentioned.
This is such helpful practical advice! The medical alert system is something I hadn't considered but makes perfect sense. My biggest worry is what happens when I need to run errands and leave him alone. Creating that detailed inventory sounds overwhelming but I know it's necessary. He gets frustrated when I ask too many questions about our finances, so I'm trying to gather information gradually during his better moments. The automatic bill pay suggestion is brilliant - I'll set that up this week while he can still understand what we're doing. Thank you for mentioning SHIP. I had no idea that program existed. It sounds like exactly what I need to understand our Medicare options better. You're right about taking it one step at a time. Some days I feel completely paralyzed by everything I need to figure out, but posts like yours help me see there are concrete steps I can take.
I'm going through a very similar situation with my mother who has early-stage dementia, so I completely understand how overwhelming this feels. A few additional things that have been lifesavers for us: **Financial Power of Attorney - get it done IMMEDIATELY**: Like others said, this becomes impossible once cognitive decline progresses. We waited just a few months too long and had to involve doctors to verify mom's capacity. **Social Security Representative Payee**: Since you mentioned your husband gets confused about financial matters, consider applying to become his representative payee now. This gives you legal authority to manage his SS benefits and can prevent issues if he becomes unable to handle his own affairs. **Credit cards**: Try applying for a secured card through your current bank - they already know your banking history. Also, many credit unions are more lenient with members who have limited credit history. **Important timing note**: You mentioned his doctor thinks his condition will progress faster than average. If that's the case, prioritize the legal documents (POA, healthcare directives) over everything else. The financial stuff can be figured out later, but once he can't legally sign documents, your options become much more limited and expensive. **One practical tip**: Start handling more of the day-to-day finances now (bill paying, bank visits, etc.) while he can still guide you through the process. This helps you learn the systems while he's available to help. You're doing everything right by planning ahead. It's hard, but future you will be so grateful for the preparation you're doing now.
Thank you so much for sharing your experience with your mother - it helps to know I'm not alone in this. The timeline pressure you mentioned really hits home. My husband's neurologist used the phrase "aggressive progression" which honestly scared me more than I let on. I'm definitely prioritizing the POA this week. I've already scheduled an appointment with an elder law attorney for Friday, and I'm hoping we can get all the legal documents done while he's still having consistent good days. The Representative Payee program sounds like something I should look into soon. I've noticed he's already getting confused about some financial decisions, like last week he couldn't remember why we have certain automatic payments set up. Your point about learning the systems while he can still guide me is so important. I started taking over bill paying last month and there were so many little details I never knew about - like which utility company we use for what, or how he organizes the filing system. I'm trying to document everything as I learn it. Can I ask how the Representative Payee application process worked for your mom? Was it complicated or did SSA make it straightforward once you had the medical documentation?
The Representative Payee application was actually more straightforward than I expected, though it did require some patience with the process. You'll need to fill out Form SSA-11 (Request to be Selected as Payee) and provide medical documentation of your husband's inability to manage his finances. The key thing that helped us was having his neurologist write a detailed letter explaining mom's cognitive limitations and how they specifically impact her ability to handle financial matters. SSA was pretty responsive once they had the medical evidence - the whole process took about 6-8 weeks from application to approval. One thing to note: you don't have to wait until he's completely incapacitated. If his doctor can document that the dementia is affecting his financial judgment (like the confusion about automatic payments you mentioned), that can be sufficient grounds for the application. Also, I'm glad you're getting the elder law attorney involved this week. They can help coordinate the POA and Representative Payee applications so they work together properly. Some attorneys will even help with the SSA paperwork as part of their service. You're being incredibly proactive - that "aggressive progression" timeline makes everything feel urgent, but you're tackling the most important things first. The legal protections will give you the foundation to handle everything else that comes up.
Everyone keeps talking about "reduced benefits" before FRA but no one mentioned exactly HOW reduced. For someone with an FRA of 66 and 8 months, taking benefits just 4 months early (in May instead of September) would result in a reduction of about 2.2% from your full benefit amount. That's PERMANENT - meaning for the rest of your life, your benefit would be 97.8% of what it could have been. Whether that trade-off is worth it depends on your financial situation. Just something to consider!
Just wanted to add one more important detail that might help with your planning - when you do apply (whether it's for September benefits or earlier), make sure to have all your documents ready ahead of time. You'll need your birth certificate, W-2 forms or tax returns, and bank account information for direct deposit. The application process itself can take a few weeks to process, so don't wait until the last minute! I applied about 2 months before I wanted my benefits to start and it worked out perfectly timing-wise. Also, once you start receiving benefits, you'll get a letter each year showing your payment schedule for the upcoming year, which really helps with budgeting.
I went through this exact same situation two years ago! The phone wait times are absolutely brutal - I feel your pain. I ended up successfully applying online for ex-spouse benefits and it was much easier than I expected. Here's what worked for me: Go to ssa.gov and start the retirement application. When it asks about previous marriages, select yes and provide your ex's information (name, DOB, and SSN if you have it - but name and DOB should work). The system will automatically consider both your own record and spousal benefits and pay whichever is higher. For the documents, I scanned my marriage certificate and divorce decree as clear PDFs and uploaded them during the application. You don't need every page of the divorce decree - just the pages that show the marriage dates, divorce date, and final judgment. One thing that really helped me was doing the application late at night (around 10-11 PM) when their servers seemed less busy. The whole process took about an hour including uploading documents. I got confirmation within a week and my first payment about a month later. Don't stress too much about the early filing reduction - sometimes getting money now is more important than maximizing future payments. You're the only one who knows your situation best!
This is exactly the kind of detailed, step-by-step guidance I was hoping for! Thank you so much for sharing your experience. The tip about applying late at night when servers are less busy is brilliant - I never would have thought of that. I'm definitely going to try the online route first before dealing with those awful phone waits. It's reassuring to hear from someone who actually went through the same process successfully. Did you have any issues with them requesting additional documentation after you submitted everything online?
I just went through this process myself about 6 months ago and wanted to share what worked for me! The online application definitely works for ex-spouse benefits, but here are some tips that made it smoother: 1. Make sure you have your ex's full legal name exactly as it appears on official documents - middle names, suffixes, etc. The SSA system is picky about exact matches. 2. You don't need to notify your ex that you're applying. The SSA handles everything behind the scenes and your ex won't even know unless they specifically ask SSA about their record. 3. For the document uploads, I found it helpful to call them "clear and legible scans" - use a scanning app on your phone rather than just taking photos. The contrast needs to be really good or they'll reject them. 4. One thing I wish someone had told me: you can actually start the application, save it, and come back to finish it later if you need to gather more documents. Don't feel pressured to complete everything in one sitting. The whole process took about 3 weeks from application to first payment for me. The reduction at 62 was worth it in my case since I needed the income. Hang in there - the online system really does work once you get past the initial hurdles!
This is incredibly helpful! I especially appreciate the tip about using exact legal names - I can see how that would trip people up. Quick question: when you saved and came back to the application later, did you have any issues with it timing out or losing your progress? I'm worried about starting something and then having to redo everything if I need to step away to find documents.
As someone who's been through the SSA maze myself, I'd definitely recommend scheduling that in-person appointment! The automated messages you're getting are just their standard processing notifications - they don't really tell you anything useful about your actual SSI eligibility. The reality is that with your husband's military retirement and VA disability income totaling $5,600/month, you're likely over the SSI income limits (which are around $1,415/month for couples in 2025). But it's still worth getting an official determination so you know for sure. One thing to keep in mind: when your husband does claim his Social Security at 62 in 2028, your spousal benefit will be based on his reduced amount since he's claiming before full retirement age. Given that you already have his military pension and VA disability for income, you might want to crunch the numbers on whether it makes sense for him to wait until his full retirement age (probably 67) to maximize both of your lifetime benefits. Also, don't forget about TRICARE for Life when he turns 65 - that plus Medicare will give you excellent healthcare coverage even if you have to wait a bit longer for it. Hang in there!
This is really helpful advice! I think you're absolutely right about getting that in-person appointment to get a definitive answer rather than trying to decode these automated messages. And you make an excellent point about potentially waiting longer than 62 for my husband to claim - I keep hearing from people that the math often works out better if you can afford to wait until full retirement age. Since we do have his military benefits to live on, maybe we should seriously consider that option. The TRICARE for Life mention is great too - I sometimes forget about all the different pieces that will eventually come together. Thanks for the encouragement and practical perspective!
I really feel for your situation! As a military spouse myself, I know how isolating it can feel when the system doesn't seem designed for people who've sacrificed their own careers for service and caregiving. Based on what others have shared, your household income of $5,600/month unfortunately puts you well over the SSI limits. But here's something encouraging - spousal Social Security benefits are typically much better than SSI anyway! When your husband claims at 62, you could potentially get up to 50% of his benefit amount, which will likely be significantly more than the maximum SSI payment. That said, I'd echo what others have mentioned about considering whether he should wait past 62 to claim. Since you have his military retirement and VA disability providing a solid foundation, running the numbers on waiting until his full retirement age (probably 67) could mean substantially higher lifetime benefits for both of you. Also, don't overlook that you'll eventually have an amazing healthcare setup with Medicare + TRICARE for Life - that's honestly one of the best healthcare combinations you can have in retirement. The waiting is frustrating, but you're actually in a much better position than many people. Your husband's military service is going to provide you with multiple layers of financial security that most civilian couples don't have access to. Hang in there!
Thank you so much for this encouraging perspective! It really helps to hear from another military spouse who understands this unique situation. You're absolutely right that we're actually in a better position than many people - sometimes when you're in the middle of trying to figure everything out, it's easy to lose sight of that. The point about Medicare + TRICARE for Life is especially reassuring since healthcare costs are such a big worry for retirement planning. I think you and others have convinced me that we really need to sit down and do the math on waiting past 62 versus claiming early. It sounds like the patience might really pay off in the long run, especially since we're fortunate to have his military benefits as a bridge. Thanks for the reminder that his service will continue to provide for our family even in retirement!
Diego Flores
Thank you everyone for your helpful responses. This clarifies so much for us. I'll make sure to work with the hospice social worker to look into the additional medical cost assistance programs mentioned, and I'll definitely make sure my dad has his direct deposit information on file with SSA. It sounds like there's no benefit to pursuing the compassionate allowance route in our situation, which helps us focus our energy on more productive paths. I truly appreciate all of your insights and experiences during this difficult time.
0 coins
Nia Wilson
•Wishing your family strength during this difficult time. Please come back if you have any other questions as things progress.
0 coins
Elijah Jackson
I'm so sorry about your mother's diagnosis. This is such a difficult time for your family. Just wanted to add one more thing that might be helpful - if your parents haven't already, make sure they have all the important paperwork organized (Social Security cards, Medicare cards, bank account info, etc.) in one place that your dad can easily access. When my grandmother was going through something similar, we found it really helpful to have everything ready ahead of time so my grandfather didn't have to search for documents while dealing with grief. Also, consider having your mom sign any necessary forms or authorizations now while she's still able to, so your dad can handle things on her behalf if needed later. The community here has given you excellent advice about the Social Security aspects - I hope some of the other assistance programs work out to help with costs.
0 coins