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one other thing about the special needs kids - make sure you look into setting up a special needs trust if you havent already. if they qualify for SSI (not SSDI) when they're adults then having assets in their name could disqualify them. my sister's kid lost benefits for 6 months because of this!!
I'm a newcomer here but wanted to share what I learned from a similar situation. I had to navigate survivor benefits with special needs children too, and one thing that really helped was getting everything documented early. For the disability determination process, start collecting medical records NOW - not just recent ones, but going back to when their disabilities were first diagnosed. The SSA looks for evidence that the disability began before age 22, so having that complete medical timeline is crucial. Also, don't overlook vocational rehabilitation services. My state's VR program helped my special needs son get job training that actually INCREASED his allowable work activity under SSA rules, which meant he could earn some income without losing benefits. One more tip - if you decide to use a service like Claimyr to get through to SSA faster, make sure you have all your documents ready (marriage certificates, death certificates, kids' SSNs, medical records) before you call. They can run scenarios quickly if you have everything at hand. Good luck with this complex situation - it's overwhelming but you'll get through it!
I'm going through a very similar situation with my 17-year-old son who has intellectual disabilities and receives survivors benefits. One thing I learned that might help - when you call SSA, specifically ask about the "protective filing date." If you can get them to establish a protective filing date before her 18th birthday, it can help ensure there's no gap in benefits even if the paperwork takes time to process. Also, keep detailed records of all her daily care needs - things like medication management, meal preparation, transportation, personal hygiene assistance, etc. The more specific you can be about what she can't do independently, the stronger your case will be. I created a daily care log that really helped when we had to document my son's limitations. The stress of this transition is real, but it sounds like you're on the right track by starting early. Don't be afraid to be persistent with SSA - sometimes you need to call multiple times to get consistent information. Good luck with everything!
The protective filing date is such an important point - I hadn't heard of that before! I'll definitely ask about it when I call. And the daily care log is a brilliant idea. I think I take for granted how much I help her with because it's just become routine, but writing it all down would really show the extent of her needs. Thank you for sharing your experience - it helps so much to know other families are going through this too.
I'm also navigating this transition with my daughter who has autism and will be 18 soon. Reading through everyone's experiences has been incredibly helpful! I wanted to add that when I spoke with our disability advocate last month, she mentioned that it's really important to emphasize the *functional limitations* rather than just the diagnoses when filling out the forms. For autism specifically, they want to see how it impacts her ability to work, interact socially, handle changes in routine, manage personal care, etc. Even if your daughter seems "high functioning" in some areas, document everything she struggles with - executive functioning issues, sensory processing problems, difficulty with transitions, need for prompting or supervision. Also, if she's ever had any work experiences (like supported employment or volunteer work), make sure to document what accommodations or supports were needed. This can actually strengthen the case by showing she tried to work but needed significant assistance. The whole process is overwhelming but this community has given me so much confidence that we can get through it. Sending support to all the families dealing with this transition!
This is such valuable advice about focusing on functional limitations! I think I've been too focused on her diagnoses rather than how they actually affect her daily life and ability to be independent. You're right that documenting everything she struggles with is crucial - even things that might seem minor can add up to show she needs ongoing support. I'm going to start making detailed notes about her executive functioning challenges and how much prompting she needs for routine tasks. It's really reassuring to connect with other families going through the exact same transition. Thank you for sharing these insights!
Just to clarify one more thing - the monthly earnings limit only applies to the first year you receive benefits. In 2026 and beyond, they'll use the annual test until you reach your full retirement age of 67. Also, remember that the earnings limit only applies to wages and self-employment income. It doesn't count pensions, investments, interest, annuities, capital gains or other government benefits. And once you hit your FRA, there's no earnings limit at all.
Just wanted to add one more important point - make sure you apply for benefits about 3 months before you want them to start (so around March for June benefits). This gives SSA time to process your application and ensures your first payment arrives on time. When you apply online or in person, there's a specific question about when you plan to retire - that's where you'll indicate June 2025. The system should automatically apply the monthly earnings test for your first year. Also keep documentation of your final day of work in case you ever need to prove your retirement date later on.
I'm so sorry for your loss. This is exactly the kind of confusing situation that adds unnecessary stress during an already difficult time. Based on what others have explained about Social Security's payment timing, it sounds like you're absolutely entitled to keep that March payment since your father was alive for the entire month it covers. I went through something similar with my mother-in-law, and the key thing I learned is to document everything carefully. Keep records of when you report the death to SSA, save any confirmation numbers they give you, and consider keeping a simple log of all the steps you take. This not only protects you legally but also helps you stay organized when you're grieving and everything feels overwhelming. That $2,350 can definitely help with funeral costs - you've got enough to worry about without adding financial stress on top of everything else.
Thank you so much for the kind words and practical advice about documentation. You're absolutely right that keeping detailed records is important - I've been so focused on the immediate decisions that I hadn't thought about creating a proper paper trail. I'll start a simple log today documenting all my calls to SSA, any confirmation numbers, and the steps I'm taking. It's reassuring to hear from someone who went through a similar situation and came out okay on the other side. The stress of potentially making the wrong financial decision on top of grieving has been really overwhelming, so knowing that this March payment can legitimately help with the funeral costs is such a relief.
I'm so sorry for your loss. This is an incredibly stressful situation to navigate while you're grieving. I want to echo what others have said - that March payment that arrived on April 15th is legitimately part of your father's estate. Social Security pays benefits the month after they're earned, so that payment was for March when your father was alive the entire month. One thing I'd suggest is calling SSA first thing in the morning (8 AM sharp) when wait times are typically shorter. When you do get through, ask them to walk you through exactly what happens next and request they send you written confirmation that the death has been properly recorded in their system. This gives you documentation for the estate records. That $2,350 can absolutely be used for funeral expenses - you have enough to deal with right now without worrying about money that rightfully belongs to the estate. Take care of yourself during this difficult time.
I'm so sorry for your loss as well. Your advice about calling at 8 AM is really valuable - I've been trying to get through during midday and the wait times have been impossible. I'll definitely set my alarm early tomorrow and try right when they open. Getting that written confirmation sounds like a smart move for the estate records. It's been such a relief reading everyone's consistent explanations about the March payment being legitimate - the funeral director really had me worried that I'd be doing something wrong by using it for expenses. Thank you for taking the time to offer such thoughtful guidance during what I know is a difficult topic to discuss.
Chloe Anderson
my friends kid got turned down even tho he had autism because they said his iq was too high, it was like 85 i think. your daughter having 71 will probably help her case
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StarStrider
•That's good to know. Her functioning is definitely significantly impaired both academically and in daily living skills, so hopefully that will be clear in the evaluation.
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Dmitry Popov
I'm a disability advocate and wanted to add some perspective on the classification question. You're right to be confused - SSA's categorization system doesn't always align with how we typically think about disabilities in educational or medical settings. The key thing to understand is that SSA uses a "listings" approach where they have specific criteria for different conditions. Your daughter would likely be evaluated under both Listing 12.10 (Autism Spectrum Disorder) AND potentially 12.05 (Intellectual Disorder) given her IQ and functional level. What really matters for approval is demonstrating that she has "marked" limitations in at least two areas of functioning, or "extreme" limitation in one area. With her academic functioning at 1st grade level at age 15, this should be well-documented. One tip: when she applies at 18, make sure to emphasize her adaptive functioning deficits, not just academic ones. SSA looks at things like money management, social interaction, following complex instructions, maintaining hygiene independently, etc. These daily living skills are often more predictive of work capacity than IQ scores alone. The transition at 18 can actually work in your favor since they'll evaluate her independently of family income. Start preparing those records now!
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